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The key purpose for our service is to clinically assess and provide appropriate wheelchairs and associated equipment (posture and pressure care) to clients with a long-term mobility need, (over 6 months). The Wheelchair Service will continue to support the clients and maintain any issued equipment. Having the most appropriate mobility equipment can improve quality of life, facilitate independence, enable access into the wider community and reduce the risk of developing deformity for our clients.
The wheelchair service provides training for the community prescribers of basic wheelchairs for adult clients that are not totally wheelchair dependant. We offer specialist assessment for adult clients that are totally wheelchair dependent, all children and bariatric clients. We run a bespoke seating service for clients with complex postural needs that require made to measure / moulded seating. We are able to pressure map as part of a specialist pressure care assessment and provide a range of complex cushions. We work closely with seating companies and hold regular clinics for equipment trail or review.
Each new episode of care is completed within 18 weeks of referral and this is normally sufficient for most clients, however if something takes longer to resolve we would continue to work with the client until the clinical situation required. We accept referrals for review throughout the time the client has the equipment, and have an approved repairer contract to ensure that the wheelchairs are properly maintained while it is on issue.
We currently review all bespoke seating clients annually. We would like to offer a review service for all children and powered wheelchair users but we are currently not commissioned to do this.
We provides a range of services to support children and young people aged 0 - 18 years (which can be extended to 19 years to support transition to adult services for young people with special needs ) who require skilled nursing support in the community.
We provide specialist clinical support for families to enable them to care for their child in their own home, to avoid unnecessary hospital admission and promote high quality family centred care.
1. Skilled Care of any nursing procedure that can safely be undertaken at home if a child or young person requires a specific clinical procedure for example intravenous, subcutaneous, intramuscular medication. Other examples include wound care and gastrostomy care.
2. Symptom Control Management if the child or young person requires a period of regular assessment and monitoring of symptoms, for example blood pressure monitoring or oxygen monitoring. The CCN's also support oxygen dependent babies, children/ young people at home and children with complex medical needs and work together with a range of professionals to assess plan and deliver care to maximise opportunities.
3. Education - if the family requires training to enable them to continue providing support and ongoing care, for example enteral feeding, suctioning and administration of medication.
4. Acting as advocate for child and family, identifying a Lead Professional in conjunction with family.
5. Acting as resource for other professionals to the right person, at the right time care for the child/young person in the right way.
The aim of our service is to support children with complex medical continuing healthcare needs to live within their family home and fulfil their potential as individuals. This includes supporting them in a variety of settings in the community for example, schools and nurseries. Without the support of the team many families would find it impossible to continue to care for their child at home.
The Heart Failure Nurse Service aims to enhance the care of patients with a diagnosis of heart failure, improving quality of life and ultimately preventing avoidable admissions to the acute sector. This is achieved by focusing on improving patient self-management, through education and support, also offering educational sessions to staff in primary care.
The service provides both on-going clinical management of the condition by nurse prescribing, self-management advice and support components and actively encourages the involvement of the family and carers. The service enhances primary care through independent nurse prescribing.
Contact a Family is a national charity for families with disabled children
We provide information, advice and support. We bring families together so they can support each other. We campaign to improve their circumstances, and for their right to be included and equal in society.
Please click the link to open to the Contact A Family website
Provides support and information for families and carers of people with Down's Syndrome and heart issues, specifically related to the heart but touching on other areas as affected by the medical problems.
East London NHS Foundation Trust (ELFT) provides mental health services for people in Bedfordshire.
The service has been commissioned by Bedfordshire Clinical Commissioning Group (BCCG), in partnership with Central Bedfordshire Council and Bedford Borough Council.
We are committed to the ongoing development of mental health and learning disability services.
• We clinically assess, diagnose and manage a range of speech, language, communication, eating and drinking difficulties in children aged 0-19.
• Our service contributes to better outcomes for children and young people with special educational needs and disabilities and their families by optimizing their speech language and communication potential and helping them to achieve their potential educationally and socially.
• The Speech and Language (S and LT) Service works across the whole county providing help in both community and hospital settings. We treat children up to the age of 16 years (up to 19 years in special education), who have a difficulty with communication or swallowing.
• The Service is provided in a number of ways, depending on need. This may be e.g. individual or group treatment, parent/carer workshops and drop -in information clinics.
• The service also undertakes a role in providing training and specialist support to parents/carers and staff working with children and young people in schools, residential units and other settings. This enables parents/ carers and professionals involved with the child, to provide an appropriate level of support and input
• The service provides treatment via a range of methods. We provide training in children’s communication development for local authority preschool and educational settings. We train parents and carers in developing children’s speech and language development. We treat children in groups and individually, depending on their clinical need.
• We will treat and support a child for as long as our intervention is clinically indicated. Discharge will occur when objectives have been met. In children with long term conditions, on-going management of communication skills can often be undertaken by the family and/ or trained adults working with the child. Discharge is only undertaken with the knowledge and agreement of the family and other involved professionals. We accept re referrals for children known to the service, if re assessment and further advice is requested.
• On-going support is provided via training and advice for settings and schools and parents involved with the children on our caseload.
• We also have a public Facebook page for families and professionals to access. We aim to provide information and ideas for supporting speech, language and communication needs, as well as new research articles and training dates, where appropriate. To join in, search ‘Children’s Speech and Language Therapy in Luton and Bedfordshire’ or visit www.facebook.com/paedsltlutonbedfordshire.
A Communicator Guide offers specialist one to one support to people who have developed or are developing a sight and hearing loss. This is known as acquired deafblindness.
People with acquired deafblindness fall into two main groups -Adults with acquired deafblindness - such as those born with Usher syndrome and those who have been disabled by an accident, and Older People - who have developed sight and hearing problems due to age related medical conditions. Those over the 70 are more likely to be affected.
Our Communicator Guides have received extensive training in communication and guiding skills, their role is to support the Deafblind person to access the world around them, facilitate communication, maintain their independence and to enhance their quality of life. The Communicator Guides enable each person to use their hours of support in any way they wish, which may include: shopping, social activities, sports activities, companionship, reading and attending appointments.
One-to-One support to Deafblind children and adults, acting as an enabler for the individual to help in their social and personal development, as well as health and general wellbeing.
By providing one-to-one support to congenitally Deafblind children or adults, an Intervenor acts as an enabler, promoting the person's social and personal development, encouraging their independent skills and facilitating their communication with the world around them. Intervenor support may be provided in the person's home, in their local community, in an educational or vocational setting or a combination of these.
Intervenor schemes are usually funded by direct payments, individual budgets, social services, local health or education authorities. A person-centred approach to planning for leisure, learning, social, and vocational opportunities, enables Deafblind people to develop new skills and increase their independence. Individual programmes focus on daily life experiences and will include encouraging the use of residual vision and hearing, communication, development of cognitive skills, mobility, orientation and social skills.
Activities which might be included in an individual plan are: college courses, sport and leisure, art and craft activities, shopping, cooking, IT, use of public transport. Choices are made by the Deafblind person to suit their needs and interests.