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Shine is a nationwide charity supporting families living with spina bifida, hydrocephalus, Idiopathic Intracranial Hypertension and Normal Pressure Hydrocephalus. We provide information, guidance and advice about these conditions to families, schools and professionals and offer local and regional support as well as national events. We support children and adults of any age.
Sibs exists to support people who grow up with or have grown up with a disabled brother or sister. It is the only UK charity representing the needs of over half a million young siblings and over one and a half million adult siblings.
Siblings have a lifelong need for information, they often experience social and emotional isolation, and have to cope with difficult situations. They also want to have positive relationships with their disabled brothers and sisters and to be able to choose the role they play in future care and support.
We support those with a learning disability and their families on a personal basis. We are all volunteers and parents of someone with a learning isability.A useful resource on first diagnosis, we have in the past helped with applications for benefits
‘Sing and Sign’ combines a music group with the chance to learn some useful signs that will encourage early communication with your child. It is aimed at all children from 0 to 30 months, ie pre-speech and as speech is developing, whether they are developing normally or have a hearing impairment, developmental delay or communication difficulties.
Studies have shown that use of baby signing can lessen frustration in babies and toddlers, develop the language centres of the brain and stimulate learning and understanding in general. Signing also helps to develop positive social skills and effective parenting.
Each class lasts 45 minutes including age-appropriate signing, action songs, instruments, props and visual aids.
Our Vision - The long-term wider change we’re aiming for:
Children and young people achieve better outcomes because their parents will have been able successfully to navigate the SEND system. Additionally, those working with such children can access good quality information and improve their ability and communication skills when working with families.
Special Needs Jungle creates easy to understand resources, articles and information for parents and carers of children with special needs, disabilities and health conditions to better enable them to navigate the special needs system. We aim to inform, educate and empower families to self-advocate confidently, so their children get the help they need to live the best life they can.
We have a clear plan for children and young people in settings and schools so that we can identify early SEND needs and provide support through a process of good planning and reviewing. To this end we have produced two Graduated Response documents which outline and provide a clear message about responsibilities for early identification of need and what can be done to ensure plans are in place to support children and pupils with additional needs.
ONE BODY; MANY PARTS
Provide information advice and support to anyone affected by Stroke. One to one support provided up to one year depending on circumstances.
The Disability Resource Centre is an independent organisation and a registered charity, it is known as a User Led organisation which means it involves disabled people as trustees staff and volunteers. The centre is a focal point for disability services throughout Bedfordshire and Luton. It aims to
- enable people with a disability and their carers to have easy access to the information and equipment they require to live independently
- encourage the involvement of people with disabilities in the provision of services
- promote awareness of the needs of people with disabilities
- encourage collaborative services for people with disabilities
Our Disability Advice Service offers Information and Advice on a wide variety of topics relating to disability including things such as support groups, leisure activities, holidays, home visiting services, statutory services etc. We have a large equipment display area where you can try out different pieces of equipment to find the right solution for you, and now purchase from us too. We also hire out some equipment like wheelchairs, frames, crutches etc. We also offer benefits advice, assisting with form filling, and appeals and preparing for tribunal as well as benefit checks.
We also have a PA Academy for Personal Assistants and employers. Training includes First Aid, Moving and Handling, and other relevant topics, as well as specialist training modules. Courses run at various locations in Bedfordshire, Northamptonshire and Milton Keynes.
Tired Out is Family Fund’s new sleep support hub which aims to help parents and carers of disabled children to sleep better. It pulls sleep information and resources together in one place. This includes information about support available to families in their local area, useful sleep tips and a wide range of research, resources and stories from families themselves.