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Sibs exists to support people who grow up with or have grown up with a disabled brother or sister. It is the only UK charity representing the needs of over half a million young siblings and over one and a half million adult siblings.
Siblings have a lifelong need for information, they often experience social and emotional isolation, and have to cope with difficult situations. They also want to have positive relationships with their disabled brothers and sisters and to be able to choose the role they play in future care and support.
Our Vision - The long-term wider change we’re aiming for:
Children and young people achieve better outcomes because their parents will have been able successfully to navigate the SEND system. Additionally, those working with such children can access good quality information and improve their ability and communication skills when working with families.
Special Needs Jungle creates easy to understand resources, articles and information for parents and carers of children with special needs, disabilities and health conditions to better enable them to navigate the special needs system. We aim to inform, educate and empower families to self-advocate confidently, so their children get the help they need to live the best life they can.
We have a clear plan for children and young people in settings and schools so that we can identify early SEND needs and provide support through a process of good planning and reviewing. To this end we have produced two Graduated Response documents which outline and provide a clear message about responsibilities for early identification of need and what can be done to ensure plans are in place to support children and pupils with additional needs.
The Deaf and Hearing Impairment Team are a specialist service providing support across Bedford Borough and Central Bedfordshire. We work with people of all ages who are profoundly Deaf or have an acquired hearing loss.
People are offered an assessment of their hearing /communication difficulties and, if they meet eligibility criteria, can be provided with services to help them towards living as independently as possible in the community. This includes financial help towards the cost of assistive hearing devices through the Direct Payment Scheme.
The Disability Resource Centre is an independent organisation and a registered charity, it is known as a User Led organisation which means it involves disabled people as trustees staff and volunteers. The centre is a focal point for disability services throughout Bedfordshire and Luton. It aims to
- enable people with a disability and their carers to have easy access to the information and equipment they require to live independently
- encourage the involvement of people with disabilities in the provision of services
- promote awareness of the needs of people with disabilities
- encourage collaborative services for people with disabilities
Our Disability Advice Service offers Information and Advice on a wide variety of topics relating to disability including things such as support groups, leisure activities, holidays, home visiting services, statutory services etc. We have a large equipment display area where you can try out different pieces of equipment to find the right solution for you, and now purchase from us too. We also hire out some equipment like wheelchairs, frames, crutches etc. We also offer benefits advice, assisting with form filling, and appeals and preparing for tribunal as well as benefit checks.
We also have a PA Academy for Personal Assistants and employers. Training includes First Aid, Moving and Handling, and other relevant topics, as well as specialist training modules. Courses run at various locations in Bedfordshire, Northamptonshire and Milton Keynes.
We work with people of all ages with a visual impairment whose sight cannot be corrected by glasses or medical treatment. The majority of our referrals come from local and national hospitals for registration purposes, but anyone can refer to us if they are experiencing difficulties with their vision.
After an assessment, we can offer a rehabilitation plan tailored to meet a person’s needs. This may include:
Instruction on how to complete daily living tasks such as cooking, making drinks, using the telephone, and writing
Mobility training to complete local routes independently
Appropriate specialist equipment
Sign posting to local and national VI services
We aim to provide specialist knowledge and support to ensure that people understand their eye condition, regain confidence and independence, and are aware of other services available to them.