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Contact a Family is a national charity for families with disabled children
We provide information, advice and support. We bring families together so they can support each other. We campaign to improve their circumstances, and for their right to be included and equal in society.
Please click the link to open to the Contact A Family website
A Communicator Guide offers specialist one to one support to people who have developed or are developing a sight and hearing loss. This is known as acquired deafblindness.
People with acquired deafblindness fall into two main groups -Adults with acquired deafblindness - such as those born with Usher syndrome and those who have been disabled by an accident, and Older People - who have developed sight and hearing problems due to age related medical conditions. Those over the 70 are more likely to be affected.
Our Communicator Guides have received extensive training in communication and guiding skills, their role is to support the Deafblind person to access the world around them, facilitate communication, maintain their independence and to enhance their quality of life. The Communicator Guides enable each person to use their hours of support in any way they wish, which may include: shopping, social activities, sports activities, companionship, reading and attending appointments.
One-to-One support to Deafblind children and adults, acting as an enabler for the individual to help in their social and personal development, as well as health and general wellbeing.
By providing one-to-one support to congenitally Deafblind children or adults, an Intervenor acts as an enabler, promoting the person's social and personal development, encouraging their independent skills and facilitating their communication with the world around them. Intervenor support may be provided in the person's home, in their local community, in an educational or vocational setting or a combination of these.
Intervenor schemes are usually funded by direct payments, individual budgets, social services, local health or education authorities. A person-centred approach to planning for leisure, learning, social, and vocational opportunities, enables Deafblind people to develop new skills and increase their independence. Individual programmes focus on daily life experiences and will include encouraging the use of residual vision and hearing, communication, development of cognitive skills, mobility, orientation and social skills.
Activities which might be included in an individual plan are: college courses, sport and leisure, art and craft activities, shopping, cooking, IT, use of public transport. Choices are made by the Deafblind person to suit their needs and interests.
Shine is a nationwide charity supporting families living with spina bifida, hydrocephalus, Idiopathic Intracranial Hypertension and Normal Pressure Hydrocephalus. We provide information, guidance and advice about these conditions to families, schools and professionals and offer local and regional support as well as national events. We support children and adults of any age.
Provide information advice and support to anyone affected by Stroke. One to one support provided up to one year depending on circumstances.
Run by families for families
The Avenue is a positive, friendly, organisation that understands the highs and lows of living with autism. The Avenue in Biggleswade, Bedfordshire is a not for profit organisation for parents/carers, grandparents and other relatives who have a child with autism in their family. Our vision for The Avenue is to offer services that actively support the family,where our positive support groups are relaxed and friendly, where children with autism and their siblings are welcomed and where knowledge, ideas and experiences are shared.
Twitter: @TheAvenueASD 'Like' TheAvenueSupport on Facebook
Tired Out is Family Fund’s new sleep support hub which aims to help parents and carers of disabled children to sleep better. It pulls sleep information and resources together in one place. This includes information about support available to families in their local area, useful sleep tips and a wide range of research, resources and stories from families themselves.