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Active Futures

Our aim is to support self-management of a condition deemed ‘incurable’ and inadequately serviced, to give better support and quality of life for a wide group of patients diagnosed with Ehlers-Danlos Type III (Hypermobility type) and possibly some Classic type BUT NOT (at outset) vascular EDS patients or any other type.

As part of this vision we would like to offer ‘Activity’ groups for children aged 5-16years. Physiotherapy, if offered, is time limited and many children are then expected to go on and join main stream sports clubs to continue their activity. Children with this condition often need to increase muscle strength to support lax joints, improve stamina in order to keep up with peers and have balance/co-ordination issues and gross motor skill delay. This means that children often lack confidence and basic skills to be ready for main stream clubs. Our aim is to provide a weekly activity group to provide consistent activity, a supportive environment to develop muscle strength, core strength and basic skills. Each child will be individually assessed and evaluated to track their progress. We also plan to link up with local sports clubs so that when the child feels ready and if they have an interest in a particular sport we plan to offer a handover, educating the club and supporting the child in the transition.

01923 271191

Bedfordshire and Luton Wheelchair Service

The key purpose for our service is to clinically assess and provide appropriate wheelchairs and associated equipment (posture and pressure care) to clients with a long-term mobility need, (over 6 months). The Wheelchair Service will continue to support the clients and maintain any issued equipment. Having the most appropriate mobility equipment can improve quality of life, facilitate independence, enable access into the wider community and reduce the risk of developing deformity for our clients.

The wheelchair service provides training for the community prescribers of basic wheelchairs for adult clients that are not totally wheelchair dependant. We offer specialist assessment for adult clients that are totally wheelchair dependent, all children and bariatric clients. We run a bespoke seating service for clients with complex postural needs that require made to measure / moulded seating. We are able to pressure map as part of a specialist pressure care assessment and provide a range of complex cushions. We work closely with seating companies and hold regular clinics for equipment trail or review.

Each new episode of care is completed within 18 weeks of referral and this is normally sufficient for most clients, however if something takes longer to resolve we would continue to work with the client until the clinical situation required. We accept referrals for review throughout the time the client has the equipment, and have an approved repairer contract to ensure that the wheelchairs are properly maintained while it is on issue.

We currently review all bespoke seating clients annually. We would like to offer a review service for all children and powered wheelchair users but we are currently not commissioned to do this.

01525 631349

Bedfordshire Wellbeing Service

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Children's Community Medical Service

The service provides Paediatric Medical and Nursing Services to children and young people with the following conditions:
•suspected developmental delays or disorders;
•neuro-developmental problems such as Autism Spectrum Disorders, Cerebral Palsy;
•ADHD and associated behavioural problems (excluding anxiety disorders, depression, mood disorders, Obsessive Compulsive Disorders, suicidal tendency);
•Developmental Co-ordination Disorder / Dyspraxia;
•Enuresis, encopresis and constipation;
•Special Educational Needs (we do not accept referrals to confirm/rule out dyslexia);
•safeguarding concerns, alleged neglect, physical, emotional, sexual abuse;
•adoption, Looked After Child medicals;
•children with additional needs/disability and having sleep/ behaviour/ toileting/feeding problems (in Nurse led clinics at CDC).

It also investigates, assesses and diagnoses other underlying medical problems. Referrals to other professionals/agencies made where appropriate.

In addition, it provides specific role related functions like:
•Named Doctor for safeguarding children
•Designated Doctor for Education
•Lead Doctor for NHSP & LAC
•Medical Advisor to Adoption Panel
•Lead Paediatrician to CDOP

The service complies with statutory requirements and has extended its role to develop health activities in line with “Every Child Matters”.

01234 310172

Children's Community Nursing

We provides a range of services to support children and young people aged 0 - 18 years (which can be extended to 19 years to support transition to adult services for young people with special needs ) who require skilled nursing support in the community.
We provide specialist clinical support for families to enable them to care for their child in their own home, to avoid unnecessary hospital admission and promote high quality family centred care.

Our services:
1. Skilled Care of any nursing procedure that can safely be undertaken at home if a child or young person requires a specific clinical procedure for example intravenous, subcutaneous, intramuscular medication. Other examples include wound care and gastrostomy care.
2. Symptom Control Management if the child or young person requires a period of regular assessment and monitoring of symptoms, for example blood pressure monitoring or oxygen monitoring. The CCN's also support oxygen dependent babies, children/ young people at home and children with complex medical needs and work together with a range of professionals to assess plan and deliver care to maximise opportunities.
3. Education - if the family requires training to enable them to continue providing support and ongoing care, for example enteral feeding, suctioning and administration of medication.
4. Acting as advocate for child and family, identifying a Lead Professional in conjunction with family.
5. Acting as resource for other professionals to the right person, at the right time care for the child/young person in the right way.

01234 310103

Children's Continence Service

The Children’s Continence Service promotes continence for children and young people in Bedfordshire and Luton. The service is primarily for special needs children who require help and support with toilet training including daytime wetting, constipation and soiling.

At the initial assessment, information and advice is given on helping the child acquire toileting skills including routines and recommended fluid intake. Families will be informed how to access a provision of nappies, if appropriate to the child’s needs.

Other help we can give includes workshops on toilet training; advice on intermittent self-catheterisation; visual symbols, reward charts and care plans; telephone advice; liaison with education and social services staff and follow up assessments.

01582 109070

Children's Continuing Care Team

The aim of our service is to support children with complex medical continuing healthcare needs to live within their family home and fulfil their potential as individuals. This includes supporting them in a variety of settings in the community for example, schools and nurseries. Without the support of the team many families would find it impossible to continue to care for their child at home.

01234 310103

Children's Intermediate Care Service

The Children’s Intermediate Care Service consists of a multi-disciplinary team comprising of a number of specialists working together to provide a co-ordinated approach to meeting the needs of children and young people with complex health needs in the community. The team include the following:

•Children’s Community Nurses;
•Children’s Continuing Care;
•Children’s Respiratory Nurse;
•Paediatric Continence Adviser;
•Special Needs Nurses and Nursery Nurses;
•Child Development Centre Nursing Team;
•Early Support Manager.

The team also works in partnership with the Local Authorities to ensure a holistic approach to meeting the health and social care needs of children and young people by focussing on the individual rather than specific needs.

This service operates a case management approach to care, co-ordinating service provision and resource allocation based on clinical assessment of health need. The service aims to reduce hospital attendance and admission by doing short term acute assessment and treatment at the child’s home and by offering advice to other professionals, allocation to support robust community packages of care, in partnership with wider Children’s services to ensure that specialist health needs are met wherever the placement.

01234 310103

Childrens Nursing Team at the Child Development Centre

The Children’s Nursing Team at the Child Development Centre (CDC) co-ordinates and supports paediatric clinics for children and their families. Working in partnership with paediatricians and families while waiting for, or following, diagnosis, supporting families at this often difficult time working to support transition into education and universal services.

We provide nursing advice and health promotion and safeguard and promote the welfare of children accessing the service.

The Nursing Team also oversee the Information Room which provides resources regarding specific conditions, support groups and a number of other topics related to special needs for children, young people and their families.

01234 310278

CHUMS Child Bereavement, Trauma And Emotional Wellbeing Service

CHUMS offers four services in Bedford Borough which are aimed at children, young people and their families.

Bereavement Service - any child or young person who has been bereaved is able to access bereavement support which may be in the form of individual or group support. Group support includes parents/carers. Ongoing support is also available for parents and teenagers on a monthly basis with other events such as a Remembrance Service and Family Day being offered during the year.

Trauma Service – offers support to children and young people who have been bereaved in traumatic circumstances such as murder, suicide, road traffic collision as well as those showing signs and symptoms of post traumatic stress disorder (PTSD). The service is also able to support children and young people affected by other traumas such as sexual abuse, witness to domestic violence or witness to another traumatic event.

Emotional Wellbeing Service - short term support for children and young people presenting with a mild to moderate mental health difficulty. Presenting issues include anxiety, relationship difficulties, low mood and low self esteem. Group support is offered to those with anxiety and we offer a group programme for children and young people who have an ASD diagnosis. Parents/carers are included in our group programmes.

Recreational Therapeutic Service - this service is offered to young people who have found it difficult to engage with traditional therapies and/or are finding it hard to engage with education; they may be at risk of exclusion or have been excluded. Support is offered by activity based programmes including football or music as a tool for engagement.

01525 863924

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