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Active Futures

Our aim is to support self-management of a condition deemed ‘incurable’ and inadequately serviced, to give better support and quality of life for a wide group of patients diagnosed with Ehlers-Danlos Type III (Hypermobility type) and possibly some Classic type BUT NOT (at outset) vascular EDS patients or any other type.

As part of this vision we would like to offer ‘Activity’ groups for children aged 5-16years. Physiotherapy, if offered, is time limited and many children are then expected to go on and join main stream sports clubs to continue their activity. Children with this condition often need to increase muscle strength to support lax joints, improve stamina in order to keep up with peers and have balance/co-ordination issues and gross motor skill delay. This means that children often lack confidence and basic skills to be ready for main stream clubs. Our aim is to provide a weekly activity group to provide consistent activity, a supportive environment to develop muscle strength, core strength and basic skills. Each child will be individually assessed and evaluated to track their progress. We also plan to link up with local sports clubs so that when the child feels ready and if they have an interest in a particular sport we plan to offer a handover, educating the club and supporting the child in the transition.

01923 271191

Bedford Open Door

We offer 1:1 counselling to young people aged 13-25 yrs in Bedford Borough. Clients are offered 12 sessions of counselling which may be extended where necessary. Clients come for counselling to deal with issues in their lives which are stopping them living full and productive lives. We do not provide on going support but may sign post them to other services where appropriate. We also have 2 counsellors working in 2 upper schools in Bedford Borough.

01234 360388

Bedfordshire and Luton Wheelchair Service

The key purpose for our service is to clinically assess and provide appropriate wheelchairs and associated equipment (posture and pressure care) to clients with a long-term mobility need, (over 6 months). The Wheelchair Service will continue to support the clients and maintain any issued equipment. Having the most appropriate mobility equipment can improve quality of life, facilitate independence, enable access into the wider community and reduce the risk of developing deformity for our clients.

The wheelchair service provides training for the community prescribers of basic wheelchairs for adult clients that are not totally wheelchair dependant. We offer specialist assessment for adult clients that are totally wheelchair dependent, all children and bariatric clients. We run a bespoke seating service for clients with complex postural needs that require made to measure / moulded seating. We are able to pressure map as part of a specialist pressure care assessment and provide a range of complex cushions. We work closely with seating companies and hold regular clinics for equipment trail or review.

Each new episode of care is completed within 18 weeks of referral and this is normally sufficient for most clients, however if something takes longer to resolve we would continue to work with the client until the clinical situation required. We accept referrals for review throughout the time the client has the equipment, and have an approved repairer contract to ensure that the wheelchairs are properly maintained while it is on issue.

We currently review all bespoke seating clients annually. We would like to offer a review service for all children and powered wheelchair users but we are currently not commissioned to do this.

01525 631349

Bedfordshire Wellbeing Service

We’re here to help. Whatever the cause of your anxiety or depression, sharing your problems could be the first step to recovery.

Contact

Contact a Family is a national charity for families with disabled children

We provide information, advice and support. We bring families together so they can support each other. We campaign to improve their circumstances, and for their right to be included and equal in society.

Please click the link to open to the Contact A Family website

0808 808 3555

Down's Heart Group

Provides support and information for families and carers of people with Down's Syndrome and heart issues, specifically related to the heart but touching on other areas as affected by the medical problems.

03001 021644

Kids

We support over 13,500 disabled children, young people and their families every year by delivering over 120 services throughout England.

KIDS is unique; there is no other organisation dedicated to providing such an extensive range of services to disabled children and young people, aged 0-25 years, irrespective of their impairment or condition.

Learning Disability England

Learning Disability England brings together Housing and Support Alliance and People First England with other national bodies led by or involving work with people with learning disabilities and their families, individual people with learning disabilities, families, friends and their supporters.

03002 010455

Mental Health and Wellbeing Services

East London NHS Foundation Trust (ELFT) provides mental health services for people in Bedfordshire.

The service has been commissioned by Bedfordshire Clinical Commissioning Group (BCCG), in partnership with Central Bedfordshire Council and Bedford Borough Council.

We are committed to the ongoing development of mental health and learning disability services.


01525 864430

Stroke Association

Provide information advice and support to anyone affected by Stroke. One to one support provided up to one year depending on circumstances.

01234 792686

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