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Our aim is to support self-management of a condition deemed ‘incurable’ and inadequately serviced, to give better support and quality of life for a wide group of patients diagnosed with Ehlers-Danlos Type III (Hypermobility type) and possibly some Classic type BUT NOT (at outset) vascular EDS patients or any other type.
As part of this vision we would like to offer ‘Activity’ groups for children aged 5-16years. Physiotherapy, if offered, is time limited and many children are then expected to go on and join main stream sports clubs to continue their activity. Children with this condition often need to increase muscle strength to support lax joints, improve stamina in order to keep up with peers and have balance/co-ordination issues and gross motor skill delay. This means that children often lack confidence and basic skills to be ready for main stream clubs. Our aim is to provide a weekly activity group to provide consistent activity, a supportive environment to develop muscle strength, core strength and basic skills. Each child will be individually assessed and evaluated to track their progress. We also plan to link up with local sports clubs so that when the child feels ready and if they have an interest in a particular sport we plan to offer a handover, educating the club and supporting the child in the transition.
We offer 1:1 counselling to young people aged 13-25 yrs in Bedford Borough. Clients are offered 12 sessions of counselling which may be extended where necessary. Clients come for counselling to deal with issues in their lives which are stopping them living full and productive lives. We do not provide on going support but may sign post them to other services where appropriate. We also have 2 counsellors working in 2 upper schools in Bedford Borough.
The key purpose for our service is to clinically assess and provide appropriate wheelchairs and associated equipment (posture and pressure care) to clients with a long-term mobility need, (over 6 months). The Wheelchair Service will continue to support the clients and maintain any issued equipment. Having the most appropriate mobility equipment can improve quality of life, facilitate independence, enable access into the wider community and reduce the risk of developing deformity for our clients.
The wheelchair service provides training for the community prescribers of basic wheelchairs for adult clients that are not totally wheelchair dependant. We offer specialist assessment for adult clients that are totally wheelchair dependent, all children and bariatric clients. We run a bespoke seating service for clients with complex postural needs that require made to measure / moulded seating. We are able to pressure map as part of a specialist pressure care assessment and provide a range of complex cushions. We work closely with seating companies and hold regular clinics for equipment trail or review.
Each new episode of care is completed within 18 weeks of referral and this is normally sufficient for most clients, however if something takes longer to resolve we would continue to work with the client until the clinical situation required. We accept referrals for review throughout the time the client has the equipment, and have an approved repairer contract to ensure that the wheelchairs are properly maintained while it is on issue.
We currently review all bespoke seating clients annually. We would like to offer a review service for all children and powered wheelchair users but we are currently not commissioned to do this.
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