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ACE Unlimited - Bedford and District Cerebral Palsy Society

ACE Unlimited is a monthly youth club for disabled young people aged 18-25 to come and meet friends in a safe and fun packed environment.

ACE has exciting activities that help young people learn new life skills and have new experiences to help build self-confidence and prepare for adulthood and independence. Every young person is encouraged to think about and work towards achieving their aspirations.

Activities include, sport, music, cooking, art and all activities are chosen by the young people attending. There is also access to the youth centres usual youth group amenities e.g. pool table, television, kitchen.

The young people are encouraged to take part in organising activities that they want to do in addition to the monthly clubs. These could be trips to the theatre, days out, music concerts, sports events etc.

Safeguarding is taken very seriously. Each young person will have a volunteer or member of staff available if needed and parents are not required to stay. All staff and volunteers are trained to meet the basic needs of the young people for example; safeguarding and epilepsy awareness. Paid staff are also trained to provide first aid, personal care, tube feeds and administration of medication and emergency medication and wherever possible any other requirement of the young person.

01234 351759

Addenbrookes Hospital

Cambridge University Hospitals (CUH) is one of the largest and best known hospitals in the UK. The Trust comprises Addenbrooke's and the Rosie, offering general and specialist and women's and maternity care respectively. As well as delivering care through Addenbrooke’s and the Rosie, it is also:

a leading national centre for specialist treatment for rare or complex conditions
a government-designated biomedical research centre
one of only five academic health science centres in the UK
a university teaching hospital with a worldwide reputation
a partner in the development of the Cambridge Biomedical Campus
CUH’s vision is to be one of the best academic healthcare organisations in the world.

01223 245151

Adult Autism Service ELFT

Within Bedfordshire and Luton we provide an Adult Autism Service (AAS) for adults aged 18+.

The service provides assessment, treatment and advice for people who are suspected as having an Autistic Spectrum Disorder (ASD) and require a definite diagnosis, followed by help to access the most appropriate service e.g. health, social care or support group.

The service operates on a multi-disciplinary model of local and community based assessment and diagnosis and works alongside existing Specialist Health Services, Local Authorities, independent and voluntary services.

01234 310593

Adventures BDCPS

BDCPS also offers short residential trips and special days out to sports events, music concerts, theatre shows etc.

These trips and days out are chosen by young people coming along to BDCPS clubs and schemes. They help young people to spend time with friends, to try out new things, build confidence, independence and achieve aspirations. Some of the adventures include other family members too.

Adventures also provide short breaks and respite to families to allow them time away from caring, time for themselves or to spend with other family members.

Plans for adventures come from talking to and working with the young people coming to BDCPS and parent/carers. The young people are encouraged to take part in organising activities that they want to do. They are not regular like clubs as they are fitted around when events are on e.g. Twickenham Rugby, Rhythms of the World Music Festival.

They cover all ages up to 25 years and a wide range of activities and can be anything from a few hours a night away, a long weekend or midweek break. Once an idea for a trip comes in the team work on how this can happen and how to raise some of the funds to do it.

Charges for the adventures are different depending on what it is and how much funding can be raised towards it by the team e.g. a big brother outdoor activity weekend cost families £195 (a fraction of the actual cost) a day out to see a Theatre performance and supper £30.

Safeguarding is taken very seriously. Each young person will have a volunteer or member of staff available if needed and parents are not required to stay/go along unless it is a specific family trip.

All staff and volunteers are trained to meet the basic needs of the young people for example; safeguarding and epilepsy awareness. Paid staff are also trained to provide first aid, personal care, tube feeds and administration of medication and emergency medication and where possible, any other requirement of the young person.

01234 351759

Alderwood LLA - The Chestnuts

We offer residential care for young people with autism and challenging behaviour. Alderwood's aim is to provide a service in the least intrusive and most effective manner, minimising the effect of the young person's disabilities and giving them the opportunity to live as normal a life as possible.

The Chestnutsis a six bedded home and each young person has a tailor made care package to suit their needs and abilities.

01604 811838

All Nations Pre-School

The main aim of pre-school is to provide care and education for children aged 2 years 6 months – 5 years. We aim to provide a safe, secure and welcoming environment where children are valued as individuals and where they can learn by playing together. We believe that young children learn best through play and aim to provide a range of activities that capture children’s interests and imaginations and help them to learn new concepts and develop their skills. We will support children and families until the children move on to school.

The Pre-school has links with the Toddler group which meets in the same space and families are very welcome to attend these sessions on Wednesday afternoons from 1.30-3pm.

01234 273773

Aurora Meldreth Manor School

Meldreth Manor supports children and young people age 6-18 years who have complex learning difficulties and is one of the few schools in the country that is also able to support complex health needs and associated difficulties. These may be as a result of conditions such as cerebral palsy, acquired brain injury, degenerative conditions or autism requiring a specialist approach.

Young people may have multiple disabilities, including sensory and physical impairments and benefit from specialist facilities designed to meet their needs. The highly skilled team of teaching, care and clinical staff take a holistic approach that considers physical, emotional, social, sensory and educational needs within a waking day curriculum.

The support provided enables each young person to engage and progress at their own level within a living and learning environment that is all about enriching individual lives and helping everyone to achieve their full potential as they reach adulthood.

Our aim is quite simple, to empower young people to grow in their own unique and inspiring way.

01763 268000

Aurora Orchard Manor School

Orchard Manor offers a supportive living and learning environment for young adults who have complex learning difficulties and is one of the few services in the country that is also able to support those with complex health needs and associated difficulties. These may be as a result of conditions such as cerebral palsy, acquired brain injury, degenerative conditions or autism requiring a specialist approach.

The young people may have multiple disabilities, including sensory and physical impairments and benefit from specialist facilities designed to meet their needs.

01763 268000

Autism Bedfordshire

Autism Bedfordshire is a charity that provides services to individuals with autism, their families, carers and professionals across Bedfordshire. Our key purpose is to provide emotional and practical support as well as information, advice, guidance and advocacy.

The outcomes our services deliver (as evidenced by our monitoring and evaluation) are:

1. Individuals with autism and their families will feel less isolated.
2. Individuals with autism will develop confidence, self-esteem, communication, social and life skills.
3. Parents will feel less stressed and better able to cope.
4. Parents will improve their knowledge about autism and the services available.

Autism is a lifelong disability so our membership reflects this as we support both children and adults. We run countywide services for our members including:

- family support groups (L.O.A.F. - Loads of Autistic Fun)
- youth groups (Wanted Fun)
- summer activity schemes
- extended services (e.g. trampolining, golf and swim sessions)
- skills training courses for adults with autism
- social groups for adults with autism
- parent training
- autism awareness training for professions (levels 1, 2 and 3)
- a helpline service (01234 350704) with trained and experienced team members on hand to answer calls (anything from services enquiries to crisis calls).

Autism Bedfordshire’s members can access books and other resources from our library and will receive our bi-monthly newsletter giving details about our services and other groups and activities that may be of interest. We also communicate information to members and our staff through e-newsletters. We have a website that anyone can access and we are on Facebook and Twitter.

01234 350704 (Helpline) 01234 214871 (enquiries)

Autismlinks

Living with autism isn’t easy, but finding out all about it should be. www.autismlinks.co.uk covers who to talk to, where to go and contains lots of helpful advice all in one place.

Some estimate that 1 in 100 people have autism. Others say it’s more like 1 in 88. Whatever the real figures, the good news is that there’s lots of support out there to help you make sense of the world of autism. Charities, support groups, and specialist service providers, are all ready to share advice and experience whenever you need it.

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