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The key purpose for our service is to clinically assess and provide appropriate wheelchairs and associated equipment (posture and pressure care) to clients with a long-term mobility need, (over 6 months). The Wheelchair Service will continue to support the clients and maintain any issued equipment. Having the most appropriate mobility equipment can improve quality of life, facilitate independence, enable access into the wider community and reduce the risk of developing deformity for our clients.
The wheelchair service provides training for the community prescribers of basic wheelchairs for adult clients that are not totally wheelchair dependant. We offer specialist assessment for adult clients that are totally wheelchair dependent, all children and bariatric clients. We run a bespoke seating service for clients with complex postural needs that require made to measure / moulded seating. We are able to pressure map as part of a specialist pressure care assessment and provide a range of complex cushions. We work closely with seating companies and hold regular clinics for equipment trail or review.
Each new episode of care is completed within 18 weeks of referral and this is normally sufficient for most clients, however if something takes longer to resolve we would continue to work with the client until the clinical situation required. We accept referrals for review throughout the time the client has the equipment, and have an approved repairer contract to ensure that the wheelchairs are properly maintained while it is on issue.
We currently review all bespoke seating clients annually. We would like to offer a review service for all children and powered wheelchair users but we are currently not commissioned to do this.
The service provides Paediatric Medical and Nursing Services to children and young people with the following conditions:
•suspected developmental delays or disorders;
•neuro-developmental problems such as Autism Spectrum Disorders, Cerebral Palsy;
•ADHD and associated behavioural problems (excluding anxiety disorders, depression, mood disorders, Obsessive Compulsive Disorders, suicidal tendency);
•Developmental Co-ordination Disorder / Dyspraxia;
•Enuresis, encopresis and constipation;
•Special Educational Needs (we do not accept referrals to confirm/rule out dyslexia);
•safeguarding concerns, alleged neglect, physical, emotional, sexual abuse;
•adoption, Looked After Child medicals;
•children with additional needs/disability and having sleep/ behaviour/ toileting/feeding problems (in Nurse led clinics at CDC).
It also investigates, assesses and diagnoses other underlying medical problems. Referrals to other professionals/agencies made where appropriate.
In addition, it provides specific role related functions like:
•Named Doctor for safeguarding children
•Designated Doctor for Education
•Lead Doctor for NHSP & LAC
•Medical Advisor to Adoption Panel
•Lead Paediatrician to CDOP
The service complies with statutory requirements and has extended its role to develop health activities in line with “Every Child Matters”.
The aim of our service is to support children with complex medical continuing healthcare needs to live within their family home and fulfil their potential as individuals. This includes supporting them in a variety of settings in the community for example, schools and nurseries. Without the support of the team many families would find it impossible to continue to care for their child at home.
The Children’s Nursing Team at the Child Development Centre (CDC) co-ordinates and supports paediatric clinics for children and their families. Working in partnership with paediatricians and families while waiting for, or following, diagnosis, supporting families at this often difficult time working to support transition into education and universal services.
We provide nursing advice and health promotion and safeguard and promote the welfare of children accessing the service.
The Nursing Team also oversee the Information Room which provides resources regarding specific conditions, support groups and a number of other topics related to special needs for children, young people and their families.
CHUMS offers four services in Bedford Borough which are aimed at children, young people and their families.
Bereavement Service - any child or young person who has been bereaved is able to access bereavement support which may be in the form of individual or group support. Group support includes parents/carers. Ongoing support is also available for parents and teenagers on a monthly basis with other events such as a Remembrance Service and Family Day being offered during the year.
Trauma Service – offers support to children and young people who have been bereaved in traumatic circumstances such as murder, suicide, road traffic collision as well as those showing signs and symptoms of post traumatic stress disorder (PTSD). The service is also able to support children and young people affected by other traumas such as sexual abuse, witness to domestic violence or witness to another traumatic event.
Emotional Wellbeing Service - short term support for children and young people presenting with a mild to moderate mental health difficulty. Presenting issues include anxiety, relationship difficulties, low mood and low self esteem. Group support is offered to those with anxiety and we offer a group programme for children and young people who have an ASD diagnosis. Parents/carers are included in our group programmes.
Recreational Therapeutic Service - this service is offered to young people who have found it difficult to engage with traditional therapies and/or are finding it hard to engage with education; they may be at risk of exclusion or have been excluded. Support is offered by activity based programmes including football or music as a tool for engagement.
The Community Eye Service cares for children from 0 - 16 years of age with strabismus, lazy eye (amblyopia) and vision defects. If a child/young person has special needs they can be seen until the age of 19 if they remain in education. The team comprises of orthoptists, orthoptic support workers, community ophthalmologists and specialist paediatric optometrists.
The Orthoptic support workers screen the vision of all children attending mainstream lower/primary schools between the age of 4-5 years.
To develop good eyesight, it is important that eye problems are identified and treated at an early age, as defects which may cause squints or strabismus- (where one eye turns in/out), often run in families or are associated with other special needs. The term lazy eye is often used to describe one eye that is not developing good vision, this is also known as Amblyopia.
Following referral, we will offer your child an initial assessment and, together, we will plan your child’s on going eye care. The treatment plan will then be reviewed regularly to improve your child’s eyes as much as possible. After your first visit to see the orthoptist your child will probably have a further appointment to see the ophthalmologist or optometrist. For this next check eye drops may be needed to enlarge the pupils. The ophthalmologist will examine the eyes to ensure they are healthy and prescribe glasses, if required. Each eye is checked to see if it is healthy and to see if your child needs glasses to correct long/short sight or astigmatism, the children’s glasses prescription voucher (HESP) will be issued.
The orthoptist will monitor the child’s eye problem, offering advice and non-surgical treatment, in order to maximise your child’s visual development. Where a child has a condition where the vision cannot be improved the team will work with other professionals to ensure the child visual capabilities are understood. The Community Eye service orthoptists work closely with the ophthalmologists and optometrists in the Community eye Service and at the Moorfields at Bedford Paediatric Eye Clinic.
Occupational Therapists (OT) help children who have difficulties with activities of daily living
skills (eg washing, dressing, eating, toileting; play and leisure; ability to participate in
school lessons or move around the school building).
This may be achieved through individual advice, treatment and recommendation of specialist equipment within the school environment
Bedfordshire Continence Service provides advice, support and treatment for people with continence needs. You can be referred for an assessment by your GP or any other health professional from whom you may be receiving care.
Continence advisors are trained nurses who have undertaken specialist training in continence management and they can assess your individual continence needs and plan a treatment programme with you. Following assessment, your continence advisor may prescribe disposable incontinence products for you, which will be delivered to your home. Children from the age of four years can be referred to the service by a health professional
This comprehensive continence service will:
•provide continence services to patients registered with a GP in Bedfordshire, living in their own home or a care home;
•ensure all patients referred to the service have access to appropriate continence advice and/or assessment;
•promote and develop the use of continence care pathways;
•lead on the procurement of the home delivery contract for supplies of continence products;
•provide a high quality, cost effective and productive service that enables innovative practice and meets individual patient needs;
•engage and support transitional planning for children transferring from paediatric to adult services;
•provide training, support and advice to carers and families;
•offer support and advice to patients with incomplete bladder emptying to become self managed;
•meet the 18 week target for appointment and treatment.
Provides support and information for families and carers of people with Down's Syndrome and heart issues, specifically related to the heart but touching on other areas as affected by the medical problems.
The service provides nutrition and dietetic advice to children for a range of nutritional problems. The advice is provided in a 1:1 clinic setting or via the telephone (where appropriate), although there are occasions when home visits are provided. Most patients receive a half hour consultation with 1-2 follow up appointments. Children receiving home enteral tube feeding to meet their nutritional needs are provided with on-going telephone support and home visits (if required).