Down's Heart Group

What our service does

Provides support and information for families and carers of people with Down's Syndrome and heart issues, specifically related to the heart but touching on other areas as affected by the medical problems.

Location of our service

Although our national office is based in Beds we are a small national charity and cover all the UK.

Who our service provides for

All ages, from pre-natal diagnosis, birth, diagnosis of heart conditions, heart surgery, those not needing or not being suitable for surgery and bereaved families.

How to start using our service

Get in touch yourself or ask a professional to make contact on your behalf.

How decisions are made about who can use our service

The service is available to anyone who cares for an individual who has Down's Syndrome and heart problems.

How we communicate with our service users

We use social media, email, our website and newsletter for input as well as general consensus from phone calls etc. We do not have access to translation services but will always do whatever we can to find other services that can offer this and provide our information in an accessible format for users as required.

Accessibility of our service

Not applicable as we do not have our own facilities but provide events in accessible locations or provide home visits etc.

Qualifications and training of our staff

All our staff and trustees have personal experience of a family member with Down's Syndrome or of working with people with learning difficulties.

General Contact Information

Call our helpline on 0300 102 1644 or email

Contact for more information

Penny Green
PO Box 4260, Dunstable, LU6 2ZT
03001 021644
0300 102 1645
Opening Hours:
General office hours but frequently checked answerphone when no-one available or outside office hours for emergencies.

Record Last Reviewed On: 09/12/2015